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hemophilianewstoday
9 小时
First hemophilia B patients in Denmark treated with Hemgenix
For the first time in Denmark, people with hemophilia B have been treated with the gene therapy Hemgenix (etranacogene ...
hemophilianewstoday
8 小时
Lessons I’ve learned about preparing for emergencies and evacuations
Columnist Jennifer Lynne, a veteran of Florida hurricanes, offers advice for those with bleeding disorders should evacuations be necessary.
hemophilianewstoday
3 天
Metagenomi aiming for clinical trials of gene-editing therapy in 2026
Metagenomi says it hopes to start clinical trials next year to test MGX-001, its gene-editing therapy candidate for ...
hemophilianewstoday
1 天
A program focused on empowering parents helped us early on
Columnist Joe MacDonald reflects on how the Parents Empowering Parents program helped him and his wife manage their son's hemophilia.
hemophilianewstoday
1 天
California doctor’s license law creates unfair burden
Columnist G Shellye Horowitz explains why she joined a federal lawsuit against a California law requiring licensing for out-of-state doctors.
hemophilianewstoday
7 天
Be Bio raises $92M to advance hemophilia B treatment BE-101
Be Biopharma has raised $92 million to support the first-in-human Phase 1/2 trial of BE-101, which is made to lower bleeding ...
hemophilianewstoday
14 天
2 new US patients given hemophilia B gene therapy Hemgenix: Reports
Two hemophilia patients in the U.S. who struggled for years with bleeds have been given Hemgenix, the first gene therapy ...
hemophilianewstoday
4 天
For my husband, video games and the hospital went hand in hand
Columnist Alliah Czarielle shares how video games helped her husband cope with hemophilia bleeds in the hospital when he was a child.
hemophilianewstoday
17 天
Exploring the connection between hemophilia A and low bone density
Columnist G Shellye Horowitz wasn't surprised to learn she had osteopenia, as her bleeding disorder increases her risk of low bone density.
hemophilianewstoday
7 天
Life with bleeds before and after a hemophilia B diagnosis at 50
Columnist Jennifer Lynne interviews Debbie Murray, a New Yorker whose hemophilia B diagnosis didn't occur until she was almost 51.
hemophilianewstoday
15 天
Hemophilia overview
Hemophilia is a rare disorder in which a person’s blood is not able to clot properly, resulting in unusually easy and prolonged bleeding. Within the blood, proteins called clotting factors normally ...
hemophilianewstoday
8 天
Moving for a job isn’t as frightening as it used to be
Now that his adult sons are managing their own hemophilia care, columnist Joe MacDonald is able to consider moving for a job.
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