For columnist Alyssa Silva, advances in the development of SMA treatments have felt like glimmers of miracles.

Cure SMA is leading an advocacy campaign seeking new research funding to address unmet challenges for people with SMA.

Study using a new, child-friendly scale found patients up to age 2 had smaller mouth openings than healthy peers, risking ...

In surveys, parents of children with SMA and healthcare professionals in Sweden note the many ways the pandemic affected ...

Scholar Rock is asking the U.S. Food and Drug Administration to approve apitegromab for people with spinal muscular atrophy.

More research is needed to confirm gray matter, the darker tissue found in the brain and spinal cord, “as a potential disease ...

Inclement weather can pose a threat to people like columnist Ari Anderson, who depend on in-home care. Such are the storms of ...

Problems with chemical messengers like dopamine were tied to posture issues in SMA in a mouse study, but levodopa therapy may ...

Icy paths and cold temperatures pose challenges for columnist Kevin Schaefer, a power wheelchair user who's living with SMA.

Regulators in the U.S. and the European Union agreed to review Biogen’s applications for approval of a higher dose Spinraza regimen for SMA.

Halsey Blocher is a young woman who was diagnosed with SMA Type 1 in 1999 after a blood test revealed a deletion of the survival motor neuron gene. She now lives with her loving family in Fort Wayne, ...

Brianna Albers (she/her) is a crip-cyborg storyteller living in Minneapolis-St. Paul. She was diagnosed with spinal muscular atrophy type 2 in 1996 and lives with co-occurring physical and mental ...