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hemophilianewstoday
8 小时
Lessons I’ve learned about preparing for emergencies and evacuations
Columnist Jennifer Lynne, a veteran of Florida hurricanes, offers advice for those with bleeding disorders should evacuations be necessary.
hemophilianewstoday
9 小时
First hemophilia B patients in Denmark treated with Hemgenix
For the first time in Denmark, people with hemophilia B have been treated with the gene therapy Hemgenix (etranacogene ...
hemophilianewstoday
1 天
A program focused on empowering parents helped us early on
Columnist Joe MacDonald reflects on how the Parents Empowering Parents program helped him and his wife manage their son's hemophilia.
hemophilianewstoday
1 天
California doctor’s license law creates unfair burden
Columnist G Shellye Horowitz explains why she joined a federal lawsuit against a California law requiring licensing for out-of-state doctors.
hemophilianewstoday
3 天
Metagenomi aiming for clinical trials of gene-editing therapy in 2026
Metagenomi says it hopes to start clinical trials next year to test MGX-001, its gene-editing therapy candidate for ...
hemophilianewstoday
4 天
For my husband, video games and the hospital went hand in hand
Columnist Alliah Czarielle shares how video games helped her husband cope with hemophilia bleeds in the hospital when he was a child.
hemophilianewstoday
7 天
Be Bio raises $92M to advance hemophilia B treatment BE-101
Be Biopharma has raised $92 million to support the first-in-human Phase 1/2 trial of BE-101, which is made to lower bleeding ...
hemophilianewstoday
7 天
Life with bleeds before and after a hemophilia B diagnosis at 50
Columnist Jennifer Lynne interviews Debbie Murray, a New Yorker whose hemophilia B diagnosis didn't occur until she was almost 51.
hemophilianewstoday
8 天
Moving for a job isn’t as frightening as it used to be
Now that his adult sons are managing their own hemophilia care, columnist Joe MacDonald is able to consider moving for a job.
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